Sunday, March 29, 2009
3/29/09 Three weeks down four to go!!
This has been a pretty nice weekend, all things considered. On Friday my good friend John Ohara took me to Clifton Springs and after treatment I set up the hammered dulcimer and played for the folks in the chemo lab and the radiation lab. It was really wonderful, and felt like a miracle to be able to play for folks right now. When we got home I was completely exhausted and pretty much collapsed into bed, but it was worth every minute! On Saturday afternoon we went to the labyrinth walk that was held in our honor at the McCrobie building in Oswego. It was a wonderful event and was so deeply moving. The room was filled with so much love and support from this wonderful community of friends. I felt as if I was wrapped in a protective blanket of all these concerned friends who will help me see to it that the cancer will be gone after I do my part with these treatments. It was a wonderfully moving afternoon and a big thank you to Judith Ann for setting the whole thing up and to those who came out to walk the labyrinth and show their support. Also a big thank you to those of you who walked a labyrinth at another location and those of you who did the “finger walk” labrynith. I have put up a file with about 20 jpgs from the afternoon. Here is the url; just open the file and you’ll see thumbnails that can enlarged.
Tomorrow will be a long day, chemotherapy in the morning and radiation in the afternoon. The effects of the treatments are starting being felt quite extensively.
My throat is really sore and eating becomes more difficult everyday. We will start to use the feeding tube today or tomorrow. My voice is really weak and I think that I’ll be doing a lot of texting over the next few weeks. My beard is coming out in clumps and most likely will disappear before too long. This is all caused by how close the radiation machine needs to be to my face. So for all of you who have ever wondered what my chin actually looks like you might just get your chance to find out! I still am dealing with some nausea and I’m sure that it will be an issue again as we start round two of chemo. Hopefully we can get a leg up on it early in game this time around.
Once again I am constantly finding myself humbled and blessed by this wonderful community. Your thoughts, notes, and generosity have overwhelmed Peggy and I and we are so grateful for all that you are doing. As we continue these next four weeks of treatments I am well aware how difficult things will become. I will do my best to keep you all up to date, and I’ll look for all your wonderful vibes as we move on through all of this. Spring is almost here, the trilliums will be out in a month and we hopefully will have these treatments done by the end of April. Thanks so much again and I’ll look for you at 7:00! By the way, to date “For the Love of Friends” has been downloaded 990 times!