Tuesday, August 11, 2009
8/11/09 Small bursts of energy !!
It has been a wonderful week of traveling and performing with some really nice programs. Highlights include Café Lena, a dance at Tannery Pond and the Adirondack Music festival in Schroon Lake over the weekend. One of the best parts of doing the gigs is getting to see so many folks who have been so supportive of Peg and I during this whole process, it really is touching and for me quite emotional. I am starting to feel more comfortable performing, a month ago each job was a bit of a panic and I was not sure how things would work out, but the more we’re out playing the more natural it is beginning to feel. I am also starting to get some little bursts of energy every once in a while, it really gives me hope for things to turn around even more as time passes. Eating is still a chore but I have started to be able to eat some soft chicken and cold cuts and that has really helped a lot. Also this week I hade my first beer in over six months! The first sip went right up my nose but then things settled down and I was able to sip it down. Unfortunately it is still quite a job to get food and drink of any type down but the main thing is that I am seeing progress and that is a wonderful thing!! I am still getting quite tired from the performances but a little bit of napping can go a long way and the positive impact of being out working is just amazing.
Yesterday I saw the ENT and it was a really good visit. He reviewed my last pet scan and showed me where most of the up tick in activity is. Basically its right where most of the surgery and the bulk of the radiation was concentrated, so he also believes we need to wait until later this summer or fall when my throat has healed more to do another scan and see if things are looking clearer. He feels for a little over 3 months post treatment that I am doing great and actually was pretty amazed that I am able to do as much as I have been doing. He also was encouraging about the numbness in my hand. He has seen the carple tunnel nerve be affected by Chemotherapy many times before and thought there was a good chance that in time it might heal itself. He did look down my throat and told me it is far from being healed but the throat is making slow progress. The best news is I only need to see him every other month now, down from once a month and that is really encouraging!!
This is going to be another busy week but I am really looking forward to it! After the weekend I will doing a week of intergenerational camp at great camp Sagamore and if all goes well I may even be able to get the lost pond boat in the water. I can’t tell you thankful I am for each and every day and that I can be out doing what we love best, it really seems like a miracle to me after all that happened this Spring! But I know that this healing process would not be as successful without all of the wonderful thoughts and prayers coming from so many of you. I know I have said it before but it means so much to Peggy and I and I am so grateful. I look forward to seeing some of you later this summer and fall and as always I’ll be looking for you at 7:00 !!