Saturday, May 16, 2009
5/16/09 Baby Steps
We are now three weeks out from chemo and radiation, and things are moving ever so slowly but there are a few promising signs. I went to see the speech pathologist at Clifton Springs and she helped me to swallow some water and some tea. She feels that for three weeks out things are actually going pretty well. I will meet with her again on Monday and they are going to do what’s called a barium swallow, where they actually take X-ray pictures of you swallowing to make sure that there are not any abnormalities. If everything checks out OK she’ll put a plan together to have me start on a liquid diet and hopefully work our way to more solids in time. In the meantime time I have been trying to have a cup of cool herbal tea each day and one day I even had a half a cup of egg drop soup! It still hurts to swallow and feels extremely foreign but I’m working hard to make it happen. I also have been doing 3 to 4 tube feedings a day to try to maintain my current weight until I can once again eat to put weight back on. The mucus is still an enormous issue and has not gotten any better yet, but I know in time it will. Peggy and I did an elementary school assembly close to home in Volney NY. yesterday. I really cannot sing but it was wonderful to play and be in the groove. I had to clear stuff out of my throat between each song, but it was doable. It was really exhausting but felt good to be out doing some work. It made me feel hopeful for performing in the future! In general my energy level is beginning to come up a little bit, and every once in a while I actually get a hint of normality, and I hope those will become more frequent as we move along thru Spring and Summer.
I really want to thank everyone who helped out to make the benefit for Peggy and I, held at Blueseed studio last night. We were not able to attend but from what I understand it was sold out and was a really wonderful time. Many thanks to Carol, Dan, Roy, Jamie, Lisa, Klaus, Fran and all the volunteers and concert goers who made the event such a success !! A big Thank you to all of you, we are forever grateful.
Spring is truly in the air, the days are longer, the birds are singing, the lilacs are all in bloom and the grass is growing faster than we can keep up with. Spring of coarse is the season of hope, and with these lovely spring days I remain hopeful with each passing day. We are as always so grateful to all of you for your continued support and encouragement as we continue with this healing process. Thanks to all of you for all you do and I so look forward to seeing you at 7:00.